2/3/12

Exhaustion...

Exhaustion
Absolute and Total Exhaustion...
Overwhelmed...
Too tired to do anything about anything...
Barely treading water,
Can't think about the possibility of drowning...
So much to do,
So little time,
or energy...
one day...
at a...
time...

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Don't worry, I'll still be here waiting in the wing when you come back ;).  THANKS!
(This is what blogger has to offer, so until I find a better way...  Happy debating!)
Melody

1/31/12

I did NOT pray for a Puppet Master Personality

When I was pregnant I wholehearted prayed for the qualities my babies have like tenacity, determination and strength, along with intelligence, creativity, and a measure of fearlessness. There is  intense pride to see those traits manifested there, but then as they've grown those same tendencies make it seem so much more than "difficult" to parent them.  I know they are terrific qualities to carry as an adult, but jeez I guess it is true that you ought to be careful what you wish for!  There must be a balance to everything right?!

My oldest was born with all the above traits and more, she is also extremely vocal and has a tremendous need for control.  She'll make a VERY excellent manager some day if we can give her the skills necessary to cope with the world.  Currently, she struggles with various measures of social awareness; understanding social situations, sarcasm, and what is inappropriate or not.  She also lives with a great deal of anxiety and stress as her senses are constantly assaulted by sounds, sights, textures, and smells which take a great deal of her energy to fend off, ignore, or adapt to.  Most days the world around her is just so much that she breaks down or erupts when she finally comes to places of relative calm, like at home. 

In addition, she has a tremendous measure of perfectionism which makes it rather hard for her to accept and learn from mistakes.  In fact, she would most often prefer to not engage in anything she feels she might not be able to do well in rather than to even try.  When she does make a mistake, her first response seems to be to blame someone around her for her.  She'll say something like, "It is X's fault because he/she is doing something I don't like."  Personally, I find this extremely disturbing.

She also feels compelled to continuously tell others how she thinks things should be.  I mean correcting everything from grammar to the lines in a TV show or even how someone should crack an egg.  It is quite infuriating for others, and frustrating for her when they don't "listen to her" and do it the way she told them to.  It seems she often wants life to be like she is the puppet master and others are her puppets who will just do what she tells them to. If they don't she gets SO mad!
How do I teach my dear child to be flexible, compassionate, giving, courteous, helpful, thoughtful, understanding, and tolerant?
I have been constantly teaching, roll playing, modeling, redirecting, reinforcing, rewarding, and punishing as appropriate, yet here we are....

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Want to make a comment or read what others have said about this post?
Click on the Comments (#) in small letters under my name and you'll be led directly there.  
Don't worry, I'll still be here waiting in the wing when you come back ;).  THANKS!
(This is what blogger has to offer, so until I find a better way...  Happy debating!)
Melody

1/20/12

Process - Medication Management and Mood Disregulation

We started on this trail of medication management when my daughter was diagnosed with ADHD in first grade and when my son was diagnosed with extreme anxiety in kindergarten.  Over time, it has become a tenuous tightrope to walk.  We have tried to remain balanced while the symptoms of mood disregulation became more and more intense for both of them in very different ways.  I have personally struggled to keep up with charting moods, behaviors, dietary intake, and sleep patterns along with the changes in medication and dosages.  Not to mention that I'm juggling all the necessaries of life such as family responsibilities, home routines, school obligations (theirs and mine), job hunting etc....


"Ballance" - google search images

The kids have frequently floundered with social, emotional, and academic growth as a result of their neurological difficulties. Unfortunately, it feels to me as if we are all just guessing at what is really going on with either of them.  Much of the testing and blood work done has been inconclusive; however, diagnoses have been given based on symptoms which align with those in the Diagnostic and Statistical Manual IV (DSM IV).  We started with medications to treat the intense symptoms of ADHD/ADD and Anxiety and we all thought this would be a relatively benign means to assist them in being successful.  After all, there are millions of kids on these meds with great success. Even I wish I had had the benefits of ADD treatment when I was in school, rather than just discovering how empowering it is now as a newly diagnosed adult; therefore, I could see the potential benefits. After they started treatment there was a significantly noticeable impact in their focus, attention, and success in school for quite some time.  We all felt relief.

In hindsight, I constantly question whether the medications increased the propensity for some of the more intense issues we are seeing now.  There is no doubt the ADHD was there from the beginning for my daughter and the inattentive form of ADD was there for my son.  Also, the extreme anxiety he experienced from a very early age was highly evident, but I often wonder now if the anti-anxiety medication exacerbated the mood instability.  From the beginning, we always wondered how much of my son's difficulties were directly related to being raised in the high stress environment with his overly dominant, impulsive, and unpredictable sister.  His symptoms always seemed like post traumatic stress disorder (PTSD) to me, but Ialways questioned myself, "What do you know?"  I would tell myself.  "You're no professional."  Yet the doctors all seemed to look to me to decide what to do and whether to try what new medication, so they really didn't know any more than I.  It has been such a helpless feeling to be searching for answers which no one seems to be able to provide.

Both my son and my daughter have significant sensory challenges, yet the things that overload each of them are quite different from one another. The occupational therapy (OT) assessments done through schools however, have been less than helpful. For example, despite tremendous evidence from both parents and teachers of the presence of intense symptoms and behaviors indicative of sensory seeking behaviors and or a propensity for sensory overload, the OT's classroom observations resulted in minimal recommended accommodations in the school.  They have their good days and their bad days; unfortunately, they seem to be observed on their good days.  It has been recommended that I seek outside OT evaluation and services, but I just can't afford that.

As they grow (faster every day - I swear I can watch them grow in their sleep) I have to take it one day, one hour, one moment at a time. Although I have clear expectations - I teach, reinforce and model appropriate behavior as well as implement consequences for inappropriate behavior - I never know how either of them will respond or present in any given situation and I'm continually shocked and embarrased by much of their behavior in the course of a day.  *tears*
I feel like this is a terrible way to think about my kids, but it is real.  It's frustrating. It's exhausting.

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Just keep scroling down to the comment box with intense debate.

Melody 
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